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Trautmann, Agnes; Bodria, Monica; Ozaltin, Fatih; Gheisari, Alaleh; Melk, Anette; Azocar, Marta; Anarat, Ali; Caliskan, Salim; Emma, Francesco; Gellermann, Jutta; Oh, Jun; Baskin, Esra; Ksiazek, Joanna; Remuzzi, Giuseppe; Erdogan, Ozlem; Akman, Sema; Dusek, Jiri; Davitaia, Tinatin; Oezkaya, Ozan; Papachristou, Fotios; Papachristou, Fotios
{ "DOI": "10.2215/CJN.06260614", "abstract": "Background and objectives Steroid-resistant nephrotic syndrome is a rare kidney disease involving either immune-mediated or genetic alterations of podocyte structure and function. The rare nature, heterogeneity, and slow evolution of the disorder are major obstacles to systematic genotype-phenotype, intervention, and outcome studies, hampering the development of evidence-based diagnostic and therapeutic concepts. To overcome these limitations, the PodoNet Consortium has created an international registry for congenital nephrotic syndrome and childhood-onset steroid-resistant nephrotic syndrome.", "author": [ { "family": "Trautmann", "given": " Agnes" }, { "family": "Bodria", "given": " Monica" }, { "family": "Ozaltin", "given": " Fatih" }, { "family": "Gheisari", "given": " Alaleh" }, { "family": "Melk", "given": " Anette" }, { "family": "Azocar", "given": " Marta" }, { "family": "Anarat", "given": " Ali" }, { "family": "Caliskan", "given": " Salim" }, { "family": "Emma", "given": " Francesco" }, { "family": "Gellermann", "given": " Jutta" }, { "family": "Oh", "given": " Jun" }, { "family": "Baskin", "given": " Esra" }, { "family": "Ksiazek", "given": " Joanna" }, { "family": "Remuzzi", "given": " Giuseppe" }, { "family": "Erdogan", "given": " Ozlem" }, { "family": "Akman", "given": " Sema" }, { "family": "Dusek", "given": " Jiri" }, { "family": "Davitaia", "given": " Tinatin" }, { "family": "Oezkaya", "given": " Ozan" }, { "family": "Papachristou", "given": " Fotios" }, { "family": "Papachristou", "given": " Fotios" } ], "container_title": "CLINICAL JOURNAL OF THE AMERICAN SOCIETY OF NEPHROLOGY", "id": "82601", "issue": "4", "issued": { "date-parts": [ [ 2015, 1, 1 ] ] }, "page": "592-600", "title": "Spectrum of Steroid-Resistant and Congenital Nephrotic Syndrome in Children: The PodoNet Registry Cohort", "type": "article-journal", "volume": "10" }
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