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Spectrum of Steroid-Resistant and Congenital Nephrotic Syndrome in Children: The PodoNet Registry Cohort

Trautmann, Agnes; Bodria, Monica; Ozaltin, Fatih; Gheisari, Alaleh; Melk, Anette; Azocar, Marta; Anarat, Ali; Caliskan, Salim; Emma, Francesco; Gellermann, Jutta; Oh, Jun; Baskin, Esra; Ksiazek, Joanna; Remuzzi, Giuseppe; Erdogan, Ozlem; Akman, Sema; Dusek, Jiri; Davitaia, Tinatin; Oezkaya, Ozan; Papachristou, Fotios; Papachristou, Fotios


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{
  "DOI": "10.2215/CJN.06260614", 
  "abstract": "Background and objectives Steroid-resistant nephrotic syndrome is a rare kidney disease involving either immune-mediated or genetic alterations of podocyte structure and function. The rare nature, heterogeneity, and slow evolution of the disorder are major obstacles to systematic genotype-phenotype, intervention, and outcome studies, hampering the development of evidence-based diagnostic and therapeutic concepts. To overcome these limitations, the PodoNet Consortium has created an international registry for congenital nephrotic syndrome and childhood-onset steroid-resistant nephrotic syndrome.", 
  "author": [
    {
      "family": "Trautmann", 
      "given": " Agnes"
    }, 
    {
      "family": "Bodria", 
      "given": " Monica"
    }, 
    {
      "family": "Ozaltin", 
      "given": " Fatih"
    }, 
    {
      "family": "Gheisari", 
      "given": " Alaleh"
    }, 
    {
      "family": "Melk", 
      "given": " Anette"
    }, 
    {
      "family": "Azocar", 
      "given": " Marta"
    }, 
    {
      "family": "Anarat", 
      "given": " Ali"
    }, 
    {
      "family": "Caliskan", 
      "given": " Salim"
    }, 
    {
      "family": "Emma", 
      "given": " Francesco"
    }, 
    {
      "family": "Gellermann", 
      "given": " Jutta"
    }, 
    {
      "family": "Oh", 
      "given": " Jun"
    }, 
    {
      "family": "Baskin", 
      "given": " Esra"
    }, 
    {
      "family": "Ksiazek", 
      "given": " Joanna"
    }, 
    {
      "family": "Remuzzi", 
      "given": " Giuseppe"
    }, 
    {
      "family": "Erdogan", 
      "given": " Ozlem"
    }, 
    {
      "family": "Akman", 
      "given": " Sema"
    }, 
    {
      "family": "Dusek", 
      "given": " Jiri"
    }, 
    {
      "family": "Davitaia", 
      "given": " Tinatin"
    }, 
    {
      "family": "Oezkaya", 
      "given": " Ozan"
    }, 
    {
      "family": "Papachristou", 
      "given": " Fotios"
    }, 
    {
      "family": "Papachristou", 
      "given": " Fotios"
    }
  ], 
  "container_title": "CLINICAL JOURNAL OF THE AMERICAN SOCIETY OF NEPHROLOGY", 
  "id": "82601", 
  "issue": "4", 
  "issued": {
    "date-parts": [
      [
        2015, 
        1, 
        1
      ]
    ]
  }, 
  "page": "592-600", 
  "title": "Spectrum of Steroid-Resistant and Congenital Nephrotic Syndrome in Children: The PodoNet Registry Cohort", 
  "type": "article-journal", 
  "volume": "10"
}
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